It's not every day that you learn you have a rare brain condition. The day that I heard I did, was a changing day for me - it changed my whole world; my whole life.
It was at that moment that I knew I was exactly where I was supposed to be. I wanted the operating room, the hum of the hospital, the whirring machines, the cornflower blue scrubs. I wanted all of it, forever.
I had ten hours left. I was fourteen years old and certain of this as if it were a known fact. The following morning, they would wheel me into the operating room, cut me open, and in the process, they would kill me.
